Emily has a diagnosis of Central Core Disease (a rare neuromuscular disorder) & blateral hip dysplasia. Emily experiences significant general weakness, particularly in her legs & to a lesser degree to her upper limbs. Emily has 98% scoliosis which required her to have an extensive spinal operation to insert a steel rod into her spine.
Emily’s mother also has Central Core Disease, therfore the financial demands on the family are very significant.
“Our family would like to thank you and the John Maclean Foundation for your kind support of the $5,000 grant to help fund Emily’s new Electric Wheel Chair.
The help you have given is so much appreciated. We have had a big year with surgery, raising money to buy the new van a new walker and with out your help we would have struggled to get the chair.
We received the new a chair Zippie Pulse on Monday 2nd Sept 2013 and Emily is very happy with it.
Not only does Emily have a beautiful smile, we’ve been told that Emily also has a beautiful singing voice. We look forward to hearing it, hopefuly one day soon”.
