Following Hayley Edwards’ successful bid to the John MacLean Foundation for a bicycle some years ago, her family applied again to JMF, this time for funding to buy a travelling bed for Hayley so she can safely visit her relatives and the family are able to travel away from home for holidays.
JMF has funded Hayley’s new Mobile Safety Bed with a grant of nearly $7000. Hayley is 14, from Werombi in Western Sydney, and lives with her mother and sisters. She presents with Angelman Syndrome with ataxia and spatial awareness affecting her balance and coordination, impacting on her walking and fine motor skills. Scoliosis also affects Hayley’s posture and positioning.
Hayley is prone to falling and this is a particular problem at night as she can suddenly decide to try to get out of bed and walk around, a big concern to her mother. Her current bed is a TAD designed disability supported bed with rails and support mattress which Haley has used for many years. However, it cannot be transported, or even collapsed so it cannot be taken outside the home. This means Hayley cannot sleep anyway apart from her own bedroom, she cannot stay the night at her father’s, or with grandparents and other friends, and the family cannot all go away together for a holiday, even an overnight getaway.
Hayley’s new Adrams Shimmering Sand single portable safety bed can be used for family holidays, visiting her father or grandparents and even family fun nights with sleepovers in sibling’s rooms. The portable bed easily folds and packs away into a suitcase so it can be transported from one location to another. It is low to the ground, offers two entries either side, and can safely accommodate toys and even Hayley’s iPad.
Hayley’s mum Jodie believes this bed has helped improve her daughter’s quality of life and supported her to further access her community.
- Bed system